We visited a park today, rode our bikes and flew kites. We had such a lovely time and before we left I asked my son to take off his shirt and run around so that he can get direct sunlight on his lesions. And for the very first time, he seemed concerned about what people might say about his spots. It broke my heart that he would feel self-conscious. I told him that nobody would say anything to him and besides that, if they did he should inform them about what his disease is and that there was no reason for him to feel ashamed at all. We have researched this disease together, so he knows enough about it. I keep encouraging like always to do his best every day and to not think that much about the disease he has. So other than the PLEVA he is a very healthy kid.
Every night before he goes to sleep I check his body for any changes. And I was so sad to see a lot of new lesions. Maybe the sun made it worse for him!! :'( I'm so sad.
Day 6 Menu:
Breakfast:
Re-fried beans (healthy version) with salsa and rice
Lunch:
Spring mix salad with grilled chicken breast.
Dinner:
100% natural mesquite grilled chicken, onions, and zucchini. Brown Mexican style rice w/salsa and Guacamole.
Every night before he goes to sleep I check his body for any changes. And I was so sad to see a lot of new lesions. Maybe the sun made it worse for him!! :'( I'm so sad.
Day 6 Menu:
Breakfast:
Re-fried beans (healthy version) with salsa and rice
Lunch:
Spring mix salad with grilled chicken breast.
Dinner:
100% natural mesquite grilled chicken, onions, and zucchini. Brown Mexican style rice w/salsa and Guacamole.
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